I recently got to talk with Valerie Findley. She works with an organization called Anthony's Seeing is Believing, which will be holding a 5k/10k this weekend. Via their website, AnthonysSeeingIsBelieving.com:
Anthony was diagnosed with Leber’s Congenital Amaurosis (LCA) at 3 ½ months of age. Leber’s Congenital Amaurosis (LCA) is a very rare, genetic hereditary disorder that causes severe vision loss and blindness in infants and children. Like most parents would be, we were devastated when we received the diagnosis. However, with strong support from family and friends, we redirected the initial feelings of devastation towards the positive. We were determined to tackle the disease “head on” and provide Anthony with all the tools he would need to succeed.
I actually had NO idea this was a sort of thing that could happened and Valerie educated me on this VERY rare disorder. Get to know more about LCA and this weekend's event to help Anthony below: